Sperm donor suffers years later from inherited disease

TitleSperm donor suffers years later from inherited disease
Publication TypeJournal Article
Year of Publication2002
AuthorsGebhardt DO
JournalJournal of medical ethics
Pagination213; - discussion - 214
Date PublishedAug
Type of ArticleCase Reports
ISSN0306-6800 (Print) 0306-6800 (Linking)
Accession Number12161566
Keywords*Tissue Donors, Age of Onset, Cerebellar Ataxia / *genetics, Ethics, Medical, Humans, Insemination, Artificial / adverse effects, Male, Mass Media, Netherlands, Truth Disclosure

A case is described of a man who discovered years after donating sperm for artificial insemination, that he had a serious genetic disease, autosomal dominant cerebellar ataxia (ADCA). This manifests itself only years after puberty and occurs in 50% of the progeny. The sperm had been used for the conception of 18 children in 13 women. The parents were only told three years after the insemination. This long time interval was unavoidable since many of the parents had to be found and the hospital director wished first to discuss the matter with his legal advisors and other experts. In future, in agreement with the new law only 10 inseminations will take place with sperm from one donor. This will reduce still further the availability of donor sperm.

Alternate JournalJ Med Ethics
Notify Library Reference ID573